A MicroPreemie Story: From Hope to Horror

It’s been three months since I started this blog post and 16 months since the next part of this story.  I haven’t been able to wrap my head around writing about this experience.  It was the worst day of our family’s life…

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Waiting for Appointments? The Doctor Will be in Shortly!

One of the most exciting experiences of being chronically ill and having to see the doctor all the time is making appointments!  Are you getting the sarcastic tone?  I dream of getting to sit on the phone on hold frequently while the doctors’ staff or their nurses tell me he/she will be unavailable for weeks..maybe months!   It never made sense to me when first dealing with my diseases why I could never get an appointment in the actual week or days I needed the appointments to be!  Why could I not see the doctor when I was not feeling well or when I was presenting with the symptoms that could help the doctor diagnose me.  Instead, I would have to wait, which would result in an un eventful doctors appointment that entailed me doing my best to explain what I was going through while the doctor would look at me puzzled and state “well, I’m not sure what you were experiencing but since the symptom is no longer occurring let’s just wait and see if it comes back, then call me.”.  “FREAKIN GREAT!” I would think to myself.  In many cases, said symptom would return, and I would immediately call the doctor to be told “He’s not available until next week at the earliest” or “he’s away at a conference” or “She’s on vacation”.  Sigh… “Why can’t I ever get in when I’m actually sick?!”  So frustrating right?

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