The United States of UnHealthy Insurance

The touchiest subject of them all.  Medical Insurance.  Specifically medical insurance in the United States.  Now a days of course it’s almost considered politically uncouth to bring the subject up amongst acquaintances, but I’m going there.  I can ramble off statistics about medical bills being the number one cause of bankruptcy and why it is so important to get universal health care in this country.  I could tout of all the reasons why the arguments against universal health care are ridiculous.  How if you think medical care would go down hill or waits would be longer for appointments etc. you may be delusional as we already have those issues, it’s just we have to pay for it out of our pockets. Out of pockets or out of taxes it’s all the same.  But it’s not.  It’s financial suicide for the people in this country.  Medical Insurance companies have all the power and for those of us with chronic disease and/or rare disease it never works in our favor.  So I’ll stop there and get off my soap box.  I obviously have very strong feelings about this as most who have dealt with the medical insurance industry all feel the same way I am sure.  It’s not something anyone who hasn’t dealt with it understands.  Instead I’ll share my experience.  What one person with a chronic illness deals with.  Multiply this by millions and then you get an idea of how big of a problem it truly is.

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Parenting in pain (and other life choices)

I am often asked how I manage being a parent while being in pain or sick etc. I am asked if I would have known about my illness before being pregnant would I have decided to not be a parent?  I am doubted by many on what I am able to handle with my disease and often held back from doing the things I want to do or accomplish in life because of the doubters. My response is often that you only live once. Being sick should not hold you back from the things you truly want in life or the things in life that will make you happy. Happiness is hard to come by, often, when you are in pain and ill. So we should cherish the moments of happiness every chance we get.  Continue reading

Loneliness and Some Serious Truths

I recently went to see a production of Into the Woods.  A favorite song of mine from this musical states “You are not alone. No one is alone”.  For some reason this has stuck with me the last few days since.  I sit back and think about how these words roll off the tongue so well when it is you saying it to someone else.  Looking in the mirror and telling yourself you’re not alone is a whole other picture.  In the world of chronic illness it is so easy to be sucked into this world of secluded misery.  You begin to realize the amount of people that drop out of your life.  You feel like even those that have stuck by your side do not understand what you’re going through…  And to a certain extent they obviously don’t.  You blame yourself on occasion. Telling yourself maybe you could be stronger, maybe the pain yesterday wasn’t as bad as you were making it out to be, maybe I could fight a little harder, maybe it’s all in my head and I can make myself better.  It’s easy to be sucked into the oblivion of trying to rationalize your situation.  It often feels like no one understands this cycle we get caught in. A cycle that solves nothing and gets us no where.  So what do we do?  We fight.  Right?  That’s what everyone else does.  They fight.  And here we are again at the other end of the circle… where all is easier said than done.

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Patient (mis)Treatment

It’s time to get real about doctors and their treatment of their patients.  As a patient we often view doctors as an authority.  With their extensive training and eduction in medicine, this is normal.  When we think of a doctor we think of someone kind, patient, intelligent, and ready to serve people, for a greater purpose.  We expect, when we go to visit the doctor, their undivided attention, utmost compassion, concern for our well being, and the drive to do what ever it takes to help their patients.  Often times what we get instead is a quick hello, poked and prodded, barely a glance, maybe an eye roll or two, a prescription and a fat bill on the way out.   Continue reading